{"id":5883,"date":"2025-06-03T08:23:29","date_gmt":"2025-06-03T15:23:29","guid":{"rendered":"https:\/\/www.iths.org\/participate\/?p=5883"},"modified":"2025-06-03T08:23:29","modified_gmt":"2025-06-03T15:23:29","slug":"stripes-study-of-research-interests-priorities-and-experiences","status":"publish","type":"post","link":"https:\/\/www.iths.org\/participate\/stripes-study-of-research-interests-priorities-and-experiences\/","title":{"rendered":"STRIPES: Study of Research Interests, Priorities, and Experiences"},"content":{"rendered":"<div class=\"box summary\"><\/div>\n<p>Our research team would like to learn more about the needs and priorities of individuals and families affected by genetic conditions.<\/p>\n<p>The information we learn may help us understand what research topics are most valuable to families and most likely to be helpful in the future.<\/p>\n<p>Participation involves filling out an online survey that asks your opinions and priorities for studies related to genetic conditions.<\/p>\n<p>To join this study, please follow the link below:<\/p>\n<p><a href=\"https:\/\/redcap.link\/uwstripes\" rel=\"nofollow\">https:\/\/redcap.link\/uwstripes<\/a><\/p>\n<h3>Participant Eligibility<\/h3>\n<p>Participation is open to adults with a family member with a genetic condition, or other connection to the community of families with genetic condition (e.g., are a teacher, researcher, medical professional).<\/p>\n<h3>Contact<\/h3>\n<p>Emily Neuhaus<br \/>\n(206) 616-2889<\/p>\n<div class=\"box \"><\/p>\n<h3 class=\"dets\">Additional Study Details<\/h3>\n<p><span class=\"st\"><strong>Full Study Title<\/strong><br \/>\nSTRIPES: Study of Research Interests, Priorities, and Experiences<br \/>\n<\/span><\/p>\n<div class=\"lhalf sid\"><strong>Study ID:<\/strong> STUDY00023127<\/div>\n<div class=\"rhalf ctlink\"><strong>ClinicalTrials.gov Link:<\/strong><\/div>\n<div class=\"clear\"><\/div>\n<div class=\"lhalf start\"><strong>Start Date:<\/strong> 05\/27\/2025<\/div>\n<div class=\"rhalf end\"><strong>End Date:<\/strong> 06\/02\/2026<\/div>\n<div class=\"clear\"><\/div>\n<p><span class=\"pi\"><strong>Investigator(s)<\/strong><br \/>\nEmily Neuhaus<br \/>\n<\/span><br \/>\n<span class=\"healthy\"><strong>Accepts Healthy Volunteers?<\/strong><br \/>\nYes<\/span><\/p>\n<p><strong class=\"ssites\">Study Site(s)<\/strong><\/p>\n<div class=\"lhalf site1\">\n<h4>Online<\/h4>\n<p>1959 NE PACIFIC ST Box 357920<br \/>\nSEATTLE, Washington 98195<\/p>\n<\/div>\n<div class=\"rhalf site2\">\n<h4><\/h4>\n<\/div>\n<div class=\"clear\"><\/div>\n<p><\/div>\n","protected":false},"excerpt":{"rendered":"<p>Our research team would like to learn more about the needs and priorities of individuals and families affected by genetic conditions. The information we learn may help us understand what research topics are most valuable to families and most likely to be helpful in the&#8230;<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4,5,7,8,10,12,15,16,17],"tags":[82,1653,1654,1655],"class_list":["post-5883","post","type-post","status-publish","format-standard","hentry","category-bone-joints-muscles","category-brain-and-nervous-system","category-cardiovascular","category-child-health","category-digestive-system-and-liver","category-eyes-and-vision","category-kidney-and-urinary-system","category-lungs-and-breathing","category-mental-health-and-behavior","tag-autism","tag-genetic","tag-intellectual-disability","tag-neurodevelopment"],"_links":{"self":[{"href":"https:\/\/www.iths.org\/participate\/wp-json\/wp\/v2\/posts\/5883","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.iths.org\/participate\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.iths.org\/participate\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.iths.org\/participate\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.iths.org\/participate\/wp-json\/wp\/v2\/comments?post=5883"}],"version-history":[{"count":2,"href":"https:\/\/www.iths.org\/participate\/wp-json\/wp\/v2\/posts\/5883\/revisions"}],"predecessor-version":[{"id":5885,"href":"https:\/\/www.iths.org\/participate\/wp-json\/wp\/v2\/posts\/5883\/revisions\/5885"}],"wp:attachment":[{"href":"https:\/\/www.iths.org\/participate\/wp-json\/wp\/v2\/media?parent=5883"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.iths.org\/participate\/wp-json\/wp\/v2\/categories?post=5883"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.iths.org\/participate\/wp-json\/wp\/v2\/tags?post=5883"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}