ALL ALS ASSESS Study

The ASSESS study combines a longitudinal natural history study and biomarker collection for ALS. It aims to make ALS research accessible to everyone, including those who cannot visit academic medical centers, through new technology that allows remote participation. We are looking for people currently living with ALS, individuals who do not have ALS, are not known ALS gene carriers, or at risk of carrying an ALS causative gene to help researchers gain a deeper understanding of ALS and improve future clinical trials.

Participation will consist of in-person and/or remote visits where clinical data such as blood samples and cerebrospinal fluid (optional) will be collected. Participants will also complete speech tasks and questionnaires via our online portal.

Learn more about the ALL ALS study here: https://www.all-als.org/

Participant Eligibility

Who can participate in the ASSESS study?

Individuals currently living with ALS

Control participants including:
– Individuals without ALS or known ALS gene mutations
– Spouses or family members of ALS patients who tested negative for ALS gene mutations
– General population or others encountered at ALS sites
– Must not be at risk of carrying a causative ALS gene mutation

Contact

Lila Brisk
(206) 543-0454