03 Jun STRIPES: Study of Research Interests, Priorities, and Experiences
Our research team would like to learn more about the needs and priorities of individuals and families affected by genetic conditions.
The information we learn may help us understand what research topics are most valuable to families and most likely to be helpful in the future.
Participation involves filling out an online survey that asks your opinions and priorities for studies related to genetic conditions.
To join this study, please follow the link below:
Participant Eligibility
Participation is open to adults with a family member with a genetic condition, or other connection to the community of families with genetic condition (e.g., are a teacher, researcher, medical professional).
Contact
Emily Neuhaus
(206) 616-2889
Additional Study Details
Full Study Title
STRIPES: Study of Research Interests, Priorities, and Experiences
Investigator(s)
Emily Neuhaus
Accepts Healthy Volunteers?
Yes
Study Site(s)
Online
1959 NE PACIFIC ST Box 357920
SEATTLE, Washington 98195
