Integrating Special Populations (ISP)

Integrating Special Populations (ISP)

Integrating Special Populations (ISP) is a program focused on increasing engagement, enrollment, and retention of children, youth, and older adults, particularly from racially/ethnically and economically diverse populations, in research. ISP works closely with the Seattle Children’s Center for Diversity & Health Equity (CDHE) and Health Equity Research Community Advisory Council (CAC).

Our approach

In partnership with CDHE and CAC, the ISP program focuses on:

  • Broad stakeholder engagement to affect change
  • Eliminating institutional barriers to diversity in research participation
  • Identifying strategies that can be implemented at the study, program, center, and institutional level to advance access to research for children, youth, and older adults, particularly from racially/ethnically and economically diverse populations.

ISP develops services and training for investigators and community organizations to enable more racial/ethnic and economic diversity of youth and older adults in research. For example, our Community Guide provides a framework for community-based organizations that want to partner with academic teams in research.

The ISP program works closely with the Community Engagement program within ITHS to provide training to researchers on community-engaged research. Community Engagement also has a system in place to link community-based organizations interested in research with academic research partners.

Health Equity Research Community Advisory Council

Health Equity Research Community Advisory Council

The CAC is a community advisory council made up of a diverse group of individuals from community-based organizations, community coalitions, and community members who are committed to diversity and inclusiveness within research that is helping to guide the ISP program.

The council works with CDHE and ITHS to achieve the following goals.

  1. Build research capacity within community and among community-based organizations, so that they can:
    • Engage in community-partnered researchwith our academic and hospital organizations
    • Partner, lead, and collaborate on research that positively impacts the community
    • Prepare to respond to grant opportunitiesfor community-academic research partnerships
  2. Advance access to research for communities, so that together we can:
    • Identify community prioritiesfor health research and research participation
    • Design strategies to help underserved populations have equitable accessto research participation
    • Identify ways to respectfully engage racially/ethnically and economically diverse communities in research
    • Ensure that people of color and lower income populations benefit from and are not excluded from research that could have a positive impact on their health and well-being
Community Partnership Guide For Engaging With Academic Researchers

Community Partnership Guide For Engaging With Academic Researchers

The Community Partnership Guide for Engaging with Academic Researchers is a 3-part guide developed by the Community Advisory Council to help community organizations create a plan for how to partner with academic research teams on research projects that involve their community.

Part 1: Screening questions to use with research teams to quickly assess whether to further explore the opportunity

Part 2: Provides specific ways along a continuum in which the community based organization can engage with research team in terms of project development, partnership governance, budget, and dissemination of findings.

Part 3: A fill-in the blank Memorandum of Understanding for various levels of engagement along a wide continuum

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Cite ITHSThe Institute is supported by grants UL1 TR002319, KL2 TR002317, and TL1 TR002318 from the NIH National Center for Advancing Translational Sciences through the Clinical and Translational Science Awards Program (CTSA).

Please help us continue to support your research by citing our grant number(s) in publications we supported.