ITHS offers a variety of biomedical informatics services, including electronic medical record data assessments, biospecimen acquisition and management tools, computing and IT support, and study data management tools.
Biomedical Informatics is a resource for service, education, and innovation in the management of clinical and translational biomedical data. BMI can help clinical and translational researchers to:
We can assist investigators with planning and accessing data within the electronic medical records at UW Medicine, including related clinics and hospitals, as well as to facilitate access to data across ITHS partners. The UW Medicine Clinical Data Repository (UWCDR) alone contains more than 10 billion facts from 20 years of data on five million patient lives.
Investigators can work with ITHS consultants to obtain data for feasibility determination, power calculations, eligibility determination, and extraction of electronic medical record data for an ongoing study.
We can specifically support your research with the following.
We offer hosted systems, open source systems, and consultations for the management of biospecimen data. We also offer access to processes to discover and acquire biospecimens through our consortia partners.
We can assist investigators with planning for information technology and computing support for current and ongoing research, including:
We offer a variety of services related to study data management tools (electronic data capture, electronic case report forms), including:
ITHS BMI supports REDCap, a free, web-based application for Electronic Data Capture that was developed by a consortium of institutional partners. REDCap features a high degree of customizability for your forms and advanced user rights control. It also features free, unlimited survey functionality, a sophisticated export module with support for all the popular statistical programs, and supports HIPAA compliance.
You can use REDCap to administer simple recruitment surveys, collect data for low-budget clinical trials, support operational activities, track adverse events, create longitudinal studies, administrate multi-site studies, eliminate double data entry, and more.
ITHS BMI also supports the DCDR, which is a de-identified data repository that contains a subset of data from various UW Medicine clinical systems. View the data elements page for details on what is contained within DCDR.
The DCDR is a cohort identification/feasibility determination tool. The interface to the DCDR is a secure web-based query tool (currently powered by i2b2) that allows researchers to individually query the data at no cost.
The tool provides a graphical query interface that allows the definition of criteria and returns an aggregate count or a summary of the patients who meet the criteria. An example query in this interface would be of the form: “Give me a count of patients 18-34 with a ICD-9 diagnosis of 250.*, who were discharged live within the past six months.”
Data QUEST is an electronic health record data-sharing network designed to offer researchers access to primary care research datasets. Data QUEST spans community-based practices in the states of Washington and Idaho, which allows researchers to conduct research in more generalizable and distributed populations than is often possible with health data.
Researchers can use FindIT, the Data QUEST dictionary and data profiling tool, to easily explore the types of data contained within the Data QUEST network. An ITHS team is then available to help assess the feasibility of using Data QUEST for various research ideas and to support researchers in obtaining specific datasets.
The University of Washington Clinical Data Repository requires that all human subjects research studies utilizing repository data must pass an Honest Broker review prior to release of PHI data.
To satisfy this requirement, you must submit by email a PDF copy of the stamped, approved IRB application plus PDF copies of any modification forms which extend the approval dates of the study or change the scope of data requested.
Send the documents through the form below.
The Biomedical Informatics consulting rate is $96 per hour as of January 1, 2014. The exceptions to this consulting fee are: